Opsoclonus-myoclonus syndrome | Genetic and Rare Diseases Information Center (GARD) – an NCATS Program

2nd grandson, whom I have met once , was born with

a cancer in his spine . *Please note πŸ“, I have never had

a discussion with son or DIL about his health.

Former stated last year , that gs was born with 1 kidney.

He is doing well, just care of diet etc ..

The treatment was initially to implant chemo at tumor site **

He was prescribed a common steroid for whatever reason,

as he was loosing leg motor control , along with eye twitching .

I have scant 1 person information , but I was studying many

brain related issues .

Vaccine damage , RX damage , and the unknown by far too many

medical folks.. that’s scary .

I read of Dr Moulin, and he spoke of brains on fire πŸ”₯ from

the inflammatory induced by toxic chemicals in vaccines ,

and shared with son, via email.

I have no idea if there was cause and effect, but a Dr was

found in Springfield , Ill. who treats this , even more finite

vaccine damage effect that autism , as I read of the 75

diagnosis per year, reference was made that so few medical

were aware of what it is . 11 or so years ago when I researched.

There were 5 protocols offered , and gs responded to one ☝️

He has a supportive , loving family . Meeting him around age

3 , he was non verbal, focused on the climbing inside Mcdonald’s.

As I sat with elder gs , I watched as he climbed to the top .

Son was on phone , and responded that this was the 1st time

he had climbed alone to the top !

Of course it took some effort to get him down !

@ 3 he had Indian blue eyes, and blond hair that was a tad past

his ears . Brother and I teased about school, and his having

a girlfriend 😘. It seemed all to short , very uncomfortable

for son, I was walking on glass chards , trying not to trip

son up , and having no freaking idea what ..

Now , I do know better..and I am doing better , even

through the legacy of Domestic Abuse/ChildAbuse .

And both gs are beautiful young teens who have not

been allowed to know me, or I them .

I look forward to meeting them, sooner than later .

Below OMS

A collection of disease information resources and questions answered by our Genetic and Rare Diseases Information Specialists for Opsoclonus-myoclonus syndrome
β€” Read on rarediseases.info.nih.gov/diseases/10009/opsoclonus-myoclonus-syndrome

Author: GreatCosmicMothersUnited

I have joined with many parents affected with the surreal , yet accepted issue of child abuse via Pathogenic Parenting / Domestic abuse. As a survivor of Domestic Abuse, denial abounded that 3 sons were not affected. In my desire to be family to those who have found me lacking . As a survivor of psychiatric abuse, therapist who abused also and toxic prescribed medications took me to hell on earth with few moments of heaven. I will share my life, my experiences and my studies and research.. I will talk to small circles and I will council ; as targeted parents , grandparents , aunts , uncles etc. , are denied contact with a child for reasons that serve the abuser ...further abusing the child. I grasp the trauma and I have looked at the lost connection to a higher power.. I grasp when one is accustomed to privilege, equality can feel like discrimination.. Shame and affluence silences a lot of facts , truths that have been labeled "negative". It is about liberation of the soul from projections of a alienator , and abuser ..

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s